59 Comments

  1. July 17, 2016 / 7:07 am

    Poignant and informative … (you’re so right about wanting to get a grain of positivity from any shitty situation. Human nature, innit?). I am a runner with Reynaud’s – OK, actually now I have all day with two small beasts my bursts of ‘running’ are more like squash playing. It sucks. Mouse has the right approach and I’m glad I know now… I promise I won’t ask if I ever meet him. Love the bit about Mouse not recognising you in your wedding photo! (PS NW has NO HAIR on his head but we still save money in suncream as he won’t bloody wear any ever). Congrats on HuffPo – amazing! Think that one lies firmly in my dreams. 🙂 #kcacols

    • July 17, 2016 / 9:47 am

      Thank you for reading and commenting lovely, I get a little weird tummy flutter when you read my stuff! Sorry you’re a sufferer of the dreaded “extremities are effectively dead” condition too – awful in winter. Also sorry you’re a sufferer of the “children build a dam between you and previous hobbies” condition!! Ooooh tell NW he’ll get liver spots like Prince Phil if he’s not careful. As for the Huff, my dear I think you’ve leapfrogged it. We should do a ghost writer thing, I’ll get you in ???? #KCACOLS

  2. July 17, 2016 / 8:56 am

    What a lovely honest post. I can just imagine the amount of looks and comments you get. #kcacols

    • July 17, 2016 / 9:43 am

      Thank you, it was one of those that almost wrote itself, in about 20 minutes, which I think are the ones that have been waiting to be written for a long time. #KCACOLS

  3. July 17, 2016 / 10:00 am

    Great post. Entertaining and informative! My mum has Reynauds as well as several other auto immune genetic conditions that run through the female line in my family. People’s reactions to anything different can be strange. I am posting about it on Monday. They are torn between fearing to offend and feeling like they have to comment!

    • July 17, 2016 / 10:24 am

      Oh I’ll look out for yours tomorrow. Yes – it certainly brings out the classic British awkwardness leading the sufferer to over-compensate with reassurance, all very strange! Thank you for reading xx

  4. July 17, 2016 / 10:40 am

    I can only imagine what it must be like to have people stare and for you to have to explain the situation time and time again. A real honest and insightful post – I never even thought about how the hair on our body served a purpose. Thank you for sharing #KCACOLS

  5. July 17, 2016 / 12:14 pm

    Haha! A great read and as always full of brilliant humour ???? . I have nothing to add about alopecia (you know more about it than I do) and no glass-half-full comments for you either (you’ve noted all those too) ????

    Brilliant post x

  6. July 17, 2016 / 12:18 pm

    Darling congratulations on being on Huff Post! It must be so difficult having to explain to everybody. People say the strangest things don’t they?! I love how honest this post is, as usual your writing is gorgeous. The timing of it being just before your wedding must have been particularly hard. I totally agree that we always find the positive in any shitty situation, and it sounds like you’ve done that with relish. Oh and when I saw pictures on your FB I just assumed he was a baldy like my husband because his hair line had receded at a young age hahah. Lots of love ❤️

    • July 17, 2016 / 4:10 pm

      Ah thank you for being so lovely as always. I commented to someone else that it took me about twenty minutes to write so I think it was one of those posts that sit at the back of your brain for a while desperate to be written. Cathartic blogging! Here’s to baldy husbands from a young age, clink clink ???? much love back Ed xxx

  7. July 17, 2016 / 1:01 pm

    A very honest post there, thank you for sharing, and great that its gone in Huffington! My Hubby had alopecia when he was younger. The hair on his head has stayed away, but the body hair is still there. I like your positivity in that he is not a cancer patient, of course there is always worse that can be. However, when you are in a situation like that, especially before your wedding, it can be tough. He is lucky to have a supportive Wife and daughter, and you a lovely Hubby.
    Amanda. #kcacols

    • July 17, 2016 / 3:36 pm

      Ah thank you for the lovely feedback – I’m glad to hear your husband has kept his body hair although sorry that he’s had to go through hair loss as well. It’s important to keep things in context I guess and we could all be a lot worse off, but still. One of those “why me” moments that we’re all permitted from time to time! #KCACOLS

  8. July 17, 2016 / 2:40 pm

    Thanks for sharing something so personal. These are things people don’t tend to share or talk about. it was good to read. #KCACOLS

    • July 17, 2016 / 3:36 pm

      Thank you for the feedback and for reading Emma, glad you enjoyed it xx

  9. July 17, 2016 / 9:37 pm

    Mate! Loving your work – really honest post with your trademark humour. Big congrats for getting it on Huff Post too. #puddinglove

  10. July 18, 2016 / 12:14 am

    Huff Post you say? You kept that one quiet ???????? Well done again for that and for this post in general because it’s awesome as always! It’s something that you can’t do much about if it happens to you I guess so not much choice but to crack on regardless and focus on all the good stuff. Definitely a tough one for you all though. #KCACOLS

    • July 18, 2016 / 12:19 am

      Yes, do take a look at my published works – so far consisting of the one entry you’ve already read ???? I’m sure it’ll be a long and fortuitous relationship. Absolutely – the main thing is that it doesn’t signify anything being “wrong” so while it’s quite a hefty blow to the confidence, it hasn’t needed us to adapt to any big medical challenges, as illnesses go it’s a reasonably superficial one. Thanks for taking the time to read me, as always! #KCACOLS

  11. July 18, 2016 / 6:32 am

    You’ve dealt with this in the right way. If you don’t laugh you’d cry. But it’s hard. I know that people say it’s just hair but I makes a person part of who they are. I know I’d be gutted. Your husband is dealing with it great. I can’t believe that anyone would be bothered at your wedding though. They have come to see you celebrate your big day.

    Sally @ Life Loving

  12. July 18, 2016 / 8:37 am

    This post just flowed. It was a pleasure to read – so interesting with humour woven through it. I like your last paragraph – humans do look for the positive spin, which is rather sweet, but often so misplaced. Alison x #AnythingGoes

    • July 18, 2016 / 8:41 am

      Thank you Alison – that’s a really nice comment to read. #AnythingGoes

  13. July 18, 2016 / 10:31 am

    It must be annoying to constantly have to deal with questions about your husband’s appearance, but it sounds like you’re both handling it with humour, which is the often best way to deal with a difficult situation. I love that he asks your daughter to style his hair! And of course, she won’t think there’s anything weird about how her daddy looks – that’s just who he is to her. #bitpinklink

    • July 18, 2016 / 2:10 pm

      Thank you – yep, sometimes a child’s humour can diffuse anxieties too and she has no fear with what she asks or blurts out, which I suppose is nice…! X

  14. July 18, 2016 / 11:34 am

    Another great post, and a really interesting topic. It must be difficult to have people assuming you’re ill all the time, but I love the bit at the end about putting a positive spin on it. The lovely shaped head comment made me laugh. When Piglet was born, my auntie’s first comment about his appearance was “hasn’t he got a lovely shaped head!” I wasn’t sure if that was meant to be a compliment or not! #puddinglove

    • July 18, 2016 / 2:08 pm

      Haha it’s funny the things people isolate out to comment on! I’m sure your son has a lovely shaped head too ???? xx

  15. July 18, 2016 / 12:00 pm

    I cant believe people have the cheek to ask you upfront? or maybe thats better than just staring all the time? I had no idea alopecia could affect the whole body, it must have taken/be taking some getting used to, without having to put up with strangers comments #kcacols

    • July 18, 2016 / 2:12 pm

      Yeah he says he would always rather that they ask than just stand there staring, but sometimes he just wants a bit of anonymity from it which he can’t really get with it being so visual. Thank you for reading and commenting for #KCACOLS xx

  16. July 18, 2016 / 12:12 pm

    Well done on getting this on huff post. It must have been a shock to the system but one that i think you’ve all dealt with well as a family. Thanks for sharing.. #anythinggoes

    • July 18, 2016 / 2:03 pm

      Thank you – yep, I’ve always seen it as a problem for us both to manage which helps in terms of support. That’s what family is all about I guess! X

  17. July 18, 2016 / 1:58 pm

    Thank you for the lovely comment and for hosting #bigpinklink… Yes, I think men often get the raw end of the deal in terms of expectations and what is deemed to be ok. You’re right about children seeing the inner beauty in things too, thank goodness! X

  18. July 18, 2016 / 2:05 pm

    Thank you for that lovely comment and I’m pleased I got the delivery right, it’s hard not to get too factual and strip back to the parts that people will find most interesting. #bigpinklink xx

  19. July 18, 2016 / 2:07 pm

    Gah, I just typed a lengthy reply to this! Thank you for your comments, I definitely agree that men are expected to just deal with certain things that we would find incredibly hard. X

  20. July 18, 2016 / 5:00 pm

    A brave and honest post. I have learned so much about Alopecia and more than the science its the emotion and how you guys are coping up that is really amazing. Thanks for sharing. #puddinglove

  21. July 18, 2016 / 6:23 pm

    Bloody brilliant! I loved this post. I think people just don’t know what to say we have it with our autistic son, loads of people say, oh well he looks normal. Sometimes it would be better to say nothing at all. #BigPinkLink

    • July 18, 2016 / 7:05 pm

      Thank you…I think people are so unsure what to say that they end up word vomming all over the place to fill in the gaps! It’s frustrating isn’t it. #BigPinkLink xx

  22. July 18, 2016 / 8:15 pm

    Wow, such a personal post and so brave to write about it. I had a condition where I lost all my hair luckily it grew back when I was better but I can relate to all them feelings and emphasis. fair play to still running a great sense of overcoming adversity.
    When I lost my hair I always said I saved a ton in not buying shampoo 😉 . P.s. Hope you have a wonderful wedding on the day. X #kcacols

    • July 18, 2016 / 8:16 pm

      Oh wow – I’m sorry that you went through it too and I’m so so pleased that yours came back, I expect it’s taught you a few things about self acceptance and bravery and courage. Well done mama and thank you for commenting xx

  23. July 18, 2016 / 9:44 pm

    Such an honest and emotional post. It must have been a real shock and hard to go through, but I love the way you’ve dealt with (a good bit of humour) and how your daughter is dealing with it too. I’ve never thought of eyelashes and nostril hair in terms of alopecia. Wishing you all the best. #BigPinkLink xx

    • July 19, 2016 / 7:01 am

      Thank you for the lovely comment – once humour goes, we’re all in trouble ???? #BigPinkLink

  24. July 19, 2016 / 11:57 am

    Ah thank you for such lovely words. It was a good one to write because I could get really into it, if you know what I mean. Glad you enjoyed it ???? #KCACOLS

  25. July 19, 2016 / 8:07 pm

    Great post and you can tell that it flowed, you said it almost wrote itself , it’s funny how sometimes an idea has been bubbling away for a long time then just bursts out! I had no idea that even your nose hairs would go….the whole thing must take a huge amount of courage to face. x #bigpinklink

    • July 19, 2016 / 8:09 pm

      Thank you – yep, literally ALL the hairs. It’s a bit bonkers. No more hairy toes, that’s one positive I missed out of the original post! ???? xx

  26. July 20, 2016 / 1:07 am

    Well you totally had me at the title (which I’m sure in itself probably doesn’t say great things about my character or voyeuristic curiosity!). But oh my, this winded me. I had no idea I’d be reading a post about this. So well written; I loved it but obviously feel sad for your husband and you. Yet as you say, as so often in life, it could be worse. I honestly love the spirit and style with which you’ve written this. Hugs. #BigPinkLink

    • July 20, 2016 / 4:51 am

      Ha – I’m glad I’ve nailed the hooky title (Note: hooky, not hooker)! Thank you, really pleased you enjoyed it. Yes, things could always be better but they could always be worse too so I guess we’re doing ok. Xxx #bigpinklink

  27. July 20, 2016 / 9:45 pm

    Yes, completely true – overall health is the main thing and everything else is secondary. Thank you for reading and commenting for #puddinglove xx

  28. July 21, 2016 / 8:29 am

    I love this post and I can only imagine how shocking it would have been for you both to go through together. I found this really interesting to, knowing nothing at all about alopecia. As you say, it’s not the end of the world and could be worse, but I so admire both of your positivity xxx #anythinggoes

    • July 21, 2016 / 9:37 am

      Thank you – it’s funny how humans manage to draw positivity from nowhere especially when something leaps up as quickly and without warning as this did. Oh well, lovely shaped head etc! #anythinggoes xx

  29. July 21, 2016 / 3:59 pm

    Thanks Kat, yes – certainly made us consider things we’d never even thought could be a ‘thing’ before. Thank you for having me on #KCACOLS xx

  30. July 22, 2016 / 12:05 pm

    Oh wow, I know that was a big adjustment for you both-especially for it to start just before your wedding. I, too, think it’s funny how people try and drum up the most positive response they can-humans are truly interesting. When you said that his entire body was hairless, the first thing I thought of was the nose…the things we take for granted. I’m so happy that he is healthy overall though, and that your family’s good humor keeps your spirits high.

    Congrats on being published in the Huffington Post! <3 #KCACOLS

    • July 22, 2016 / 12:29 pm

      Thank you for such a lovely comment ???? it is fascinating in a perverse way. Hopefully one day there’ll be a magic cure, mind you he might end up looks like Cousin It from the Addams Family ????

  31. July 22, 2016 / 6:54 pm

    Yes, definitely – rather than going straight in off the bat, just try and get to know the person before you nose around trying to find out what ails them! Although that’s easier said than done. Thank you for reading and commenting for #KCACOLS xx

  32. July 23, 2016 / 8:15 pm

    What a well written post about a subject that I am sure at times has had you both in a few tears. My old Brownie leader had the same type of alopecia as your other half – she used to take her wig off when we were on camp, was a bit scary to an 8 year old but we all got used to it. I never really thought of the actual issues around having no nasal or ear hair, but I can see how that could be a problem. Thanks for sharing with #PuddingLove

    • July 23, 2016 / 8:20 pm

      That must have been a shock for you all at camp!! It’s another way of teaching children to accept difference though I guess. Thank you for hosting #PuddingLove xx

  33. July 24, 2016 / 8:27 am

    I didnt know that you could get this type of Alopecia. I cant imagine how difficult it is, as you say eyebrows etc serve a purpose. I think it is great you are writing about it and raising awareness. On a separate note, I am on the huffpost too! Off to leave a comment there as well 🙂 xxx

    • July 24, 2016 / 8:01 pm

      Ah congrats on being a fellow huffer! Thank you – lots of people have remarked similarly, that they weren’t aware of this type of alopecia, so I hope that I have boosted awareness a little bit. Thank you for reading and commenting xx

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